Matthew Sloan Walker Golf Tournament Fundraiser

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For more information please contact:

Jonathan Walker

407-970-1975

jwalker1445@cfl.rr.com

16th Annual Golf Tournament Fundraiser

for Matthew

Sunday, October 19, 2025 - Timacuan Golf Club, Lake Mary, Florida

 407-321-0010

Matthew's Story

Matthew Walker is the son of Jonathan & Cynthia Walker of Heathrow, Florida.  Matthew will be 20 years old in September.  He is one of three children, Morgan 22 and Adam 17 years old.  On behalf of the Walker Family, it is their hopes that you, your family, loved ones and friends are all doing well. 

Matthew is one of approximately 40 known males in the world born with a rare neuronal migration disorder of the brain called Subcortical Band Heterotopia.  This disorder is one in which the white and grey matter of the brain are disorganized causing the communication pathways of the brain to be challenged, therefore causing significant impairment in his physical and cognitive abilities.  Secondary to Matthew’s neurological disorder in recent years, he was diagnosed with a rare form of epilepsy known as Lennox Gastaut Syndrome causing life threatening seizures.  Matthew is unable to walk or talk and is dependent upon his family and professionals to complete his activities of daily living.  The ketogenic diet and medications are administered to Matthew through a feeding tube continuously throughout the day for nutrition and for the control of several different types of seizures.  The corpus callosotomy brain surgery Matthew had several years ago continues to show successful results.

Over the past year Matthew continues to be joyful, comfortable, and healthy in most cases, however, many changes have occurred over the past year.  Dr. Angle Claudio is Matthew’s new Neurologist, and his Epileptologist who oversees the ketogenic diet is to be determine.  Matthew’s seizures will continue because of his condition.  On average Matthew endures two seizures per day.  Labs have recently been completed and show no signs of trouble due to the long-term use of the Ketogenic Diet.   These types of labs will be completed on an annually basis.  Matthew’s new gastroenterologist is Nurse Practitioner Amy Painter.  A new designed GJ ports for tube feeding and medication delivery has been put into place to reduce leaking and skin irritation.  Matthew’s bowel and urinary retention issues continue.  Due to urinary catheterization several times a day from time-to-time Matthew will get urinary tract infections which has cause Matthew a bit grief.   All is being done to keep the UTI’s at an absolute minimum.   Physical Therapy consults have given Matthew “thumbs up” on his overall physical dexterity and have consulted the family on good physical techniques when handling Matthew.  Matthew weight now is 120 pounds.  A retractable seat has been installed in Matthew’s bathtub to insure safe transfer from wheelchair to the bath.  An annual court review of guardianship for Matthew has been completed re-appointing Jonathan and Cynthia joint guardians.

The past few years Matthew has made great progress and has grown into an amazing young man, despite his many challenges.  This fall Matthew will be entering into the 12th grade at Seminole High School supported by the Exceptional Student Services of Seminole County, Florida.  Seminole County School's Hospital Home Bound Services will continue to be available for home visits two days per week one hour per visit.  The past couple of years these sessions have been conducted via Zoom video conferencing with his teach.  Plans are to transition to face to face instruction at Matthew’s home.  Ongoing evaluations of communication devices are being considered that may be appropriate for Matthew.  A more simple version of tobii dynavox with eye gaze technology is currently being evaluated.  Matthew will continue his high school education as a twelfth grader until he graduates in 2027 with a certificate of completion.

The Annual Golf Tournament Fundraiser was created to assist financially for the care, special facilities, and medical attention that Matthew’s ongoing disabilities require. The event format this year will be similar to the last couple of years.  A boxed lunch will be provided for all attending golfers. Raffle and auction item activities will be ongoing before and during the tournament.  Matthew’s big day will conclude with a brief award ceremony and a big congratulations to the 16th Annual Miracle for Matthew Golf Tournament winning foursome.   ​​

Last year's golf tournament fundraiser was a great success!  Special thank you to the event sponsors and all who participated for giving their hearts out to Matthew:

​Raymond James & Associates, Arnold Palmer Invitational by MasterCard, Fast Signs Sanford FL, Lake Mary Pediatric Dentistry, Russie Weidl - Watson Realty, Mom's Club of Heathrow, Trademark Press Solutions, Pierce Jewelers, R.A.R.E Project, Timacuan Golf Club, Erica Karlinsky PhD, Heathrow Country Club, Steve Strassman Insurance/Allstate, Debby Taboh Photography, Park Jewelers, Heathrow Country Club, Orlando Magic, AmStar Cinemas, Vineyard Wine Company,  Jackson Family Fine Wines, Friendly Confines Restaurant, Papa Joe's Pizza, Duffy's Sports Grill, Giovanni's Italian Restaurant, Miguel & Brittany de Arcos, Dr. Robert Hoover / Foot & Ankel Associates of Florida, sophie & trey, Digital Check Corp, Florida Pediatric Associates / Eye Physicians of Central Florida, Sherwin Williams, H&F Construction, Legacy Club at Alaqua Lakes, Seminole Harley-Davidson, Wiewiora & Dunn Orthodontics, Liam Fitzpatrick's, Dexters Restaurant, Spice World, Residence Inn by Marriott Lake Mary, Another Broken Egg Cafe, Tomasino's Pizzeria, Jeff Jones Jr. Golf Instruction, Center for Health, Learning & Achievement, Transitions Physical Therapy, Pristine Nails & Spa, Kennedy's All-American Barber, Nothing bundt Cakes, Collaborative Wealth, Orlando Solar Bears, Marshall Insurance Group, Homebridge Financial, Advanced Dermatology of Heathrow, Austin & Samantha Buddendorff, Charlotte Pipe & Foundry Company, Crews Ink, Sanford Carpet & Flooring, RH Plumbing, Timacuan Champion Group, Bill & Mary Beth Ketelhut, Charlie Brinkley & Dawn Ellis, Integrated Independent Physicians Network, Timacuan Golf Club - Jr. Golf Camp, MARBLELIFE of Central Florida, Orange County Brewers / Tin & Taco, Grafton Street Pub, Johnston & Murphy Apparel and Shoes, Ruth's Chris Steak House - Lake Mary, Planet Smoothie - Heathrow, Insurance Office of America - Charlie Boornazian, Gatorlillys Boutique - Heathrow, Peach Valley Cafe - Heathrow, Mister 01 Pizza - Heathrow, Stonewood Grill & Tavern - Heathrow, 4th Street Bar & Grill, Winter Park Pines Golf Course, Davis Group CPA's

For more details on Matthew's Golf Tournament Fundraiser please click on the Golf Tournament Registration Form button.